The Growing Pressure on Working Caregivers

The Dementia Collective #37 is Live!
This episode can be found HERE
In this episode, Andrew Karesa sits down with Cindy Diogo, CEO and Co-Founder of ConSoul, to explore what it means to support employees who are caring for a loved one living with dementia. Drawing on her background in HR and People & Culture, as well as her own family caregiving journey, Cindy reflects on the growing reality that more families are trying to navigate dementia care while still holding down a job.
Together, Andrew and Cindy talk about the specific pressures dementia creates for working caregivers. They discuss the long arc of increasing care needs, the challenge of coordinating appointments and support, the emotional strain of watching a loved one decline, and the reality that many people are trying to manage all of it quietly while remaining “productive” at work.
Cindy also shares how her own family experiences, including her grandmother’s advanced vascular dementia, shaped her understanding of care and helped lead her to build ConSoul. The conversation explores what employers often miss about dementia caregiving, why flexibility matters, and how current systems still leave too many families feeling unsupported and alone.
This is a conversation about dementia, work, and the invisible weight so many caregivers carry every day.
In this episode:
• What makes dementia caregiving different in the workplace
• Why increasing care needs create growing pressure on families
• How Cindy’s family experience with dementia shaped her work
• What employers often misunderstand about dementia caregivers
• Why flexibility matters for families navigating appointments and care
• What resources caregivers may already have access to
• Why many caregivers still hide their reality at work
• What needs to change as more families face dementia at home
Whether you are supporting someone living with dementia, trying to balance care with work, or wanting to build better systems around families, this episode offers an honest look at what caregivers are carrying and what real support can look like.

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Don’t Forget to Sign Up for blueBell Connect
We are excited to announce that our patent-pending tool, blueBell Connect is now available for caregivers to sign up.
blueBell Connect provides caregivers clinically valid, personally specific and culturally appropriate support recommendations in your daily care for individuals living with dementia.
Click HERE for a blueBell Connect brochure
For more information, check out bluebellconnect.ca or email [email protected]
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