The Dementia Collective #52 is Live!

This episode can be found HERE

What does caregiving look like when no one sees what you’re carrying?

In this episode, Andrew Karesa sits down with Katie Kristofic, founder of The Carefullist, caregiver advocate, and former family caregiver, to explore the realities of supporting a loved one through Alzheimer’s disease and why she now spends her late nights helping caregivers who have nowhere else to turn.

After caring for her mother through every stage of Alzheimer’s disease, Katie transformed her own experience into a mission to make caregiving less isolating. She shares the subtle signs that first made her realize something was wrong, the challenges her family faced as her mother’s condition progressed, and how her father’s quiet devotion shaped the way they navigated dementia together. Katie also reflects on balancing caregiving with a demanding corporate career, the unexpected challenges caregivers face in the workplace, and how those experiences ultimately led her to create The Carefullist.

Together, Andrew and Katie discuss the hidden emotional weight of caregiving, the importance of meeting every person living with dementia where they are, the value of community, and why caregivers deserve far more support than they often receive. They also explore what happens after caregiving ends, how purpose can emerge from grief, and why helping others became part of Katie’s own healing.

In this episode:

* How Katie first realized something was wrong with her mother
* What Alzheimer’s looked like throughout her mother’s journey
* How her father cared for his wife at home with creativity and compassion
* The challenges of balancing a career while caring for a parent
* Why so many caregivers feel isolated and unsupported
* The importance of finding community during and after caregiving
* Practical advice for families beginning a dementia journey
* Why Katie spends her nights supporting caregivers online

Whether you are caring for a parent, spouse, grandparent, friend, neighbour, or someone living with dementia, this conversation is a reminder that while caregiving can often feel lonely, you do not have to carry it alone. Sometimes the greatest source of hope is knowing that someone else understands exactly what you’re going through.

Join 'The Village' on Patreon

If you believe in what we are building, I’m inviting you to stand with us. For only $5 per month (less than a Starbucks coffee), you can help us grow this movement, reach more families, and continue breaking the stigma around dementia care.

Your support truly makes a difference.

Village Members receive:

• Early access to new episodes

• The ability to submit questions for upcoming guests

• Occasional behind the scenes updates or voice memos from the host

• Optional name listing on our website’s “Thank You Wall”

This work cannot be done alone. Every conversation, every story, and every episode helps shift how the world understands dementia. Your five dollars directly strengthens that impact.

Join The Village HERE and help us bring more voices, more stories, and more hope to caregivers everywhere.

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Don’t Forget to Sign Up for blueBell Connect

blueBell Connect, our patent-pending dementia caregiving tool, is available for caregivers to sign up. 

blueBell Connect provides caregivers clinically valid, personally specific and culturally appropriate support recommendations in your daily care for individuals living with dementia. 

Click HERE for a blueBell Connect brochure

For more information, check out bluebellconnect.ca or email [email protected]

Click HERE to sign up